DR-TB: Phumeza Tisile intervenes at the World Health Assembly on behalf of MSF

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20 May 2014
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World Health Assembly 67 – Agenda item 12.1, Global strategy and targets for tuberculosis prevention, care and control after 2015. Intervention by Phumeza Tisile, Médecins Sans Frontières International.

My name is Phumeza Tisile. I was diagnosed with normal TB in 2010, while all along I had XDR-TB.

The journey to my cure was a matter of unfortunate events, BUT I survived.

Test Me, Treat Me

Last year with my doctor I wrote the “Test Me, Treat Me” Manifesto. Today I’m delivering the Manifesto to you, World Health Leaders.

The reason is: I wouldn't wish anyone to go through what I went through with drug-resistant TB. The drugs alone are a nightmare; becoming deaf because of a drug’s side effects is just life-destroying.

Many of whom I’ve called my friends in hospitals are no longer alive. Either the drugs didn't work, or they simply quit because the side effects from 20 tablets a day for two years is too much.

Change is what I'm hoping for. Better drugs. No toxic drugs.

I’m not the only one. I am here on behalf of people devastated by this disease all over the world. 50,000 people have endorsed our Manifesto.

Ministers, I ask you to act to make the three demands of our DR-TB Manifesto a reality.

 

Three demands

One: Everyone must have access to fast and accurate diagnosis, and to treatment not in hospitals but close to their homes. Everyone with DR-TB deserves timely treatment.

Two: Treatments must be more effective, tolerable, affordable, and be shorter. New TB drugs are needed now to give people a better chance. People are dying and we cannot afford to wait– we need a better DR-TB regimen now.

And three: Funding must be found to increase DR-TB diagnosis and treatment, and for research into new, affordable treatment regimens and other innovations.

Together, we can ensure TB is curable. But this requires more than a strategy. It requires action. I commend you for setting ambitious targets, but I ask you to act now, I ask you for change.

Find out more about MSF's work treating tuberculosis